AT Research Articles
As part of our “conversations” on various research topics, the ATIA Research Committee has identified select research articles that members may find useful. Click on an article to read or download for your research.
- Acceptance of Augmentative and Alternative Communication Technology by Persons with Amyotrophic Lateral Sclerosis
- Using Systematic Reviews and Practice Guidelines: A How-To Guide for Clinicians
- AAC for Adults with Acquired Neurological Conditions: A Review
- Duration of AAC Technology Use by Persons with ALS
- Eye Gaze Access to AAC Technology for Persons with Amyotrophic Lateral Sclerosis
- Applying Evidence Standards to Rehabilitation Research
- Late AAC Assessment for Individuals with Amyotrophic Lateral Sclerosis
- A Protocol for Identification of Early Bulbar Signs in Amyotrophic Lateral Sclerosis
- When the Best is the Enemy of the Good: The Nature of Research Evidence Used in Systematic Reviews and Guidelines
AT Research Tools
The compilation of tools here covers various genres of research. (Mention of tools in no way implies endorsement by the ATIA.)
- Reference Management Software
- Statistical Analysis Software
- Electronic Data Capture
- Behavior Imaging Software
- Qualitative Research Analysis Software
- PC Survey Software Tools
- Crowdsourcing Tools
Reference Management Software
Search online bibliographic databases; organize references; format, share and publish bibliographic data and references.
Comparison of research management software: http://en.wikipedia.org/wiki/Comparison_of_reference_management_software
Diigo is a powerful on-the-fly reference management tool as well as a knowledge-sharing community: www.diigo.com
Statistical Analysis Software
Use advanced mathematical and statistical facilities to frame predictive knowledge that can be applied to current practice to effect change; incorporates data mining, statistical analysis, descriptive and predictive analysis, charts and diagrams, etc.
Comparisons of statistical analysis software:
Electronic Data Capture
Records data live during a trial on Internet-connected devices, through uploads of video or through manual entry from data sheets, then stores data in advanced databases, so that investigators, sponsors, research organizations and regulatory agencies can access and review study data sooner for earlier insight into the conduct of studies, enabling timely decisions during the clinical development cycle.
Examples: InForm: http://www.phaseforward.com/products/clinical/edc/default.aspx
Behavior Imaging Software
A video-based “capture and access” system for recording, annotating and communicating behavior data collected in classroom, home and clinic settings. Ideal for the care and treatment of persons with behavioral and mental disorders.
Example: BI capture tool
Qualitative Research Analysis Software
Tools used to develop projects and query data from interviews and other qualitative methods by importing, sorting and analyzing audio files, videos, digital photos and documents. Can set up analysis frameworks as a structure for managing information or jump straight to the data and work up findings, build reports and prepare presentations.
Examples: NVivo 8: http://www.qsrinternational.com/products_nvivo.aspx
PC Survey Software Tools
Desktop or server-based software that generates an HTML web form that can be posted to a website. When a respondent submits a completed survey, typically the data is delivered to a designated email box. The tools process these emails and load the results in a database. Key advantages: (1) a one-time purchase cost—though you may need to buy upgrades and support; (2) faster processing, as you work on your computer or within a company network; (3) ability to post the survey to a company’s web server.
Examples: Survey Monkey: http://www.surveymonkey.com/
An extrapolation of the concept known as “the wisdom of crowds,” the foundation for the development of Wikipedia and other Web 2.0 applications, which seeks to tap the knowledge and talents of a group in order to create content and solve problems. Engages the principles of open source development to advance other types of projects and efforts.
Example: Amazon Mechanical Turk (CrowdSourcing/Human Intelligence Task Manager): https://www.mturk.com/mturk/welcome
Amazon Mechanical Turk (a description): http://en.wikipedia.org/wiki/Amazon_Mechanical_Turk